The Cystic Fibrosis Comfort Fund is a small Bristol-based charity, independent of the Cystic Fibrosis Trust, which aims to help those who suffer from Cystic Fibrosis in their daily lives and enhance their quality of life.
Modern-day treatment and care of children and adults with cystic fibrosis have improved enormously giving an increased life expectancy. However, to achieve this, many patients have a significant treatment regime on a daily basis with multiple medications, nebulisers, dietary needs and physiotherapy.
Treatment can be time consuming, exhausting and present a financial strain with loss of income or increasing financial commitments. Most patients and families try to live as normal a life as possible but this can be difficult for those with complex disease, advanced CF or awaiting transplantation.
The Comfort Fund works closely with patients, their families and professionals to financially support better care and ease the burden to patients and families.
Since the Regional Centre in Bristol has been established, we now receive requests from CF patients from a radius of approximately 50 miles around the Bristol area. As a small local charity we are very dependent on the support offered through regular small donations to enable us to continue this work.
Examples of funding from the Comfort Fund:
- Initial funding of community specialist support staff (prior to permanent establishment by the hospital Trust) e.g Nurses, a Physiotherapist and a Specialist Social Worker to support patients both in the hospital and at home
- Equipment for the new CF Adult unit at the BRI
- Start up grants for young adults setting up home for the first time
- Help with driving lessons
- Exercise equipment to help supplement physiotherapy
- Portable Oxygen Cylinders
- Provision of the new e-Flow Portable Nebulisers, to considerably reduce the time it takes to nebulise treatment
- Support for healthcare professionals to receive specialist training or attend cystic fibrosis conferences
The Trustees are volunteers and are a combination of those with personal experience of living with cystic fibrosis and healthcare professionals.
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